ALS ADVOCACY

ALS ADVOCACY
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, April 23, 2009

Do We Have A Cluster Next To The Palm Trees In Our Own Back Yard?

Does the most dangerous job in space exploration not involve being an astronaut?

http://www.wftv.com/video/19265134/index.html

Can we start counting noses now, CDC?

Do you think real estate prices around Titusville and Cape Canaveral just plummeted?

Should a veteran who worked at the Kennedy Space Center get extra benefits for double jeopardy?

Do we ask a lot of questions?

4 comments:

  1. I sure hope now the CDC cares enough to implement the national ALS Registry that they have been working on for the last 3 years. Unfortunately the registry development exceeds the life span of many people with ALS.

    I guess having ALS has made me impatient.

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  2. 18 US astronauts have died in flight. 24 cases of ALS near the space center. It appears that the problem on the ground exceeds our worst space disasters.

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  3. Advocates, please consider forwarding the link to this news coverage to ABC affiliates in your area. So far this story has had little media bounce, and it's a rather interesting story to have go plop.

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