Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, April 1, 2009

Pack Up The Winnebago And Make Tracks To DC

Following is a reminder from the ALS Association regarding Advocacy Day registration:

Have you registered for the 2009 National ALS Advocacy Day and Public Policy Conference May 10-12 in Washington, DC? If you plan to join us in the nation's capital, please register and reserve your hotel room TODAY! The deadline to receive reduced registration and hotel rates is Friday, April 10, just a few days away.

Early Bird Registration Deadline: Friday, April 10
You must register by FRIDAY, APRIL 10 in order to receive the reduced conference registration rate of $125 ($300 for non-affiliates). Fees for registrations submitted after April 10 are $250 for attendees affiliated with The ALS Association, an ALS Association Chapter or other affiliated organization and $600 for non-affiliates.
Conference registration fees are waived for all people with ALS and for a caregiver traveling with them to the conference.
Click here to register:
2009 National ALS Advocacy Day and Public Policy Conference

Hotel Reservation Deadline: Friday, April 10
April 10 is the deadline to reserve a hotel room at the reduced conference rate of $219 + tax/night. After the deadline, this special rate no longer will be available to attendees. Moreover, the hotel no longer will hold rooms specifically for conference attendees and it is possible that, after the deadline, the hotel will not have rooms available during the conference dates or they may be available at much higher rates.
To reserve a hotel room, please contact the hotel directly:
Renaissance Washington, DC Hotel
999 Ninth Street, NW
Washington, DC 20001
Phone: (202)-898-9000

ADA Rooms
The ALS Association has reserved ADA rooms at several different hotels in Washington, DC to help ensure that all PALS who want to attend the conference have access to ADA accessible accommodations. If you or your chapter wish to request an ADA hotel room, please contact Mary Wisniewski, event planner for The ALS Association's 2009 National ALS Advocacy Day and Public Policy Conference. She can be reached at or by phone, (202) 746-0043.
Please do not contact the hotel to request an ADA room as the hotel will not be able to guarantee your request.

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