Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, January 15, 2018

We Need A Simple Standard

Lest we lose our way in a fog of "partnerships," let this be the standard by which all ALS organizations provide transparency, clarity, and a celebration of generosity --

ALS organizations will publicly and promptly reveal exact donation amounts from any benefactor with an interest in selling goods or services to people with ALS.

It's simple.  Why not?  Really, why not?

Monday, January 8, 2018

Please Join Some New ALS Advocacy Grass Roots

Do you have ideas for better government policies related to ALS?

Would you find it energizing to engage in substantive discussions with other advocates?

Do you want to speak to your legislators from YOUR heart about priorities that YOU think are most important?

Here is a new gathering for you.

This is truly grassroots. It's about YOU and YOUR ideas and YOUR personal calls to action.

Please join the conversations on February 13-14.

Everyone is welcome.  Everyone is included.