Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, January 15, 2018

We Need A Simple Standard

Lest we lose our way in a fog of "partnerships," let this be the standard by which all ALS organizations provide transparency, clarity, and a celebration of generosity --

ALS organizations will publicly and promptly reveal exact donation amounts from any benefactor with an interest in selling goods or services to people with ALS.

It's simple.  Why not?  Really, why not?

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