Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, May 11, 2009

ALS Association Calls For Advocacy Action

The following is a call to action from the ALS Association. It's important. If we don't ask, ALS won't get...

If you can't be at this week's Advocacy Conference in Washington, you can still make a difference!

Today, we need every ALS Advocate who is not in Washington DC for the Advocacy Conference to contact their U.S. Senators and urge them to support continued funding for the ALS Research Program (ALSRP) at the Department of Defense. Specifically, ask them to sign the "Casey-Snowe" ALS Dear Colleague letter, which is being circulated in the Senate this week. The
letter calls on Congress to provide $10 million in funding to continue the ALSRP, the only ALS-specific research program at the DOD. Continued funding for this program also is critical because, unlike many other research programs that focus on basic science, the ALSRP is specifically designed to develop new treatments for ALS.

So please contact your Senators TODAY. The nearly 1,000 advocates from across the country who are attending the Advocacy Conference will put a face on this disease (and your message) when they meet with Members of Congress on Tuesday, May 12. With your help, we can send a loud and clear message to Congress. So please contact your Senators TODAY. And tell your friends, family and colleagues to do the same.

A sample letter you can send directly to your Senators is available in the Advocacy Action Center of our website, here: If you don't know the names of your Senators, don't worry. The Advocacy Action Center will identify them for you and allow you to send a message to them directly from the site.

A copy of the Dear Colleague letter being circulated by Senators Bob Casey (D-PA) and Olympia Snowe (R-ME) is available by clicking
here .

Thank you! Through advocacy, we are creating the roadmap that will lead to a cure!

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