ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, June 4, 2009

Global ALS / MND Day - June 21

Following is from an email communication from the International Alliance of ALS/MND Associations:

Dear Member,

I was so fortunate to meet Dalai Lama when he spoke in Iceland few days ago. He was participating in a meeting with all kind of religious groups and all of them spoke of peace and hope.

This man should be our role model for caring and peace. “Peace starts within one self, the future is something we do not know anything about, so there is no use in worrying about it, hope is that every man is doing his/her best at this moment. Here and now“

Our international ALS/MND day is 21. June - Global Day is getting closer and we are very much forward looking to that day. I encourage us all to use the day to raise awareness about this damn disease. We in Iceland will not collect money this day (we do it every day but not this day). We will use the day to “pay back” to our supporters and enjoy life with them. The following is on: Wheelchair rally, wheelchair dancing, outdoor concert and we will show for the first time a documentary film about Evald Krog and his relation with Iceland. Partnership program of the Alliance started this. A very busy and lively day.

If you do not have the ability to do anything big, just use the day to talk about ALS/MND to as many as you can.

Most important of all: Enjoy the moment in peace and hope.

See you in Berlin in December.

Best wishes


Gudjon Sigurdsson
Chairman
International Alliance of ALS/MND Associations


Donna Corbett
International Alliance Co-ordinator

International Alliance of ALS/MND Associations
United in the worldwide fight against ALS/MND

Tel: +44 1604 611821
Fax: +44 1604 624726

Email:
alliance@alsmndalliance.org

International Alliance Annual Meeting
5/6 December 2009
Allied Professionals' Forum
7 December 2009
International Symposium
8-10 December 2009
Berlin, Germany

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