Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, June 10, 2009

ALSA Publishes Information From ALS Advocacy Conference

Following is a link to newly published information from ALSA on the proceedings of the May ALS advocacy conference in Washington:

We hope that the information will expand and continue to fill our enquiring minds. What is the ALS share of the NIH budget... of the NINDS budget? When will we hear the results of the June ALS Registry investigators' meeting? Will Dr. Clive Svendsen's work go with him in his move to California that was announced last week, or will it stay in Wisconsin.

Engaged advocates thirst for facts on results. We appreciate this update, especially for those who could not attend the conference. We need a GPS to tell us exactly where we are on the road the the cure ;-)

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