Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Friday, May 27, 2011

What Are The Odds?

ALS advocacy involves starting the simple conversations that cause so many connections to ALS to come to light.

Last week alsadvocacy was in seminars with 20 people. Wearing a shirt to breakfast one morning was a conversation starter. A couple said that they had known General Tom Mikolajcik, a hero in the fight against ALS who enabled the service-related benefits for veterans stricken with ALS.

Later the next day prayers were requested for a friend of a meeting leader who had just received a serious diagnosis. It was ALS. Unbelievable.

That caused even more conversations in the group about the disease. One gentleman shared that he had lost a college roommate to ALS. Another talked of his uncle who died from it.

Twenty people. So many ALS connections. This disease is not as rare as people like to think. It strikes and kills quickly. It then moves on to strike and kill more people. We must keep the conversations and connections alive so that the world might realize that it is a problem urgently in need of a solution. We must speak up for all of those who have been silenced by ALS.

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