Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Saturday, May 7, 2011

Nothing Is Easy With ALS

This weekend hundreds of ALS advocates are converging on Washington, DC.

You may remember when travel was fun. You got all dressed up and got on the train or airplane for an exciting trip and a free deck of cards. How that has changed. Even for the most hale and hardy, airport routines and demitasse airplanes and delays take a lot of fun out of the experience.

Add ALS to that equation, and the challenges and frustrations of travel become incredible. The disease itself turns simple things into barriers. Those simple things and barriers are both physical and human. Most transportation professionals are clueless about ALS and make the journey even more difficult.

People with ALS who try to make a difference by contributing to ALS advocacy are our heroes.

Perhaps the rest of us should figure out how to do more to contribute to ALS awareness for everyone our heroes encounter on their journeys.

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