Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Friday, September 19, 2008

Communication from ALS Association

Following is a communication from the ALS Association:

Urgent Registry Update

Thanks to everyone for contacting their Senators in support of S. 3297 and the ALS Registry Act. Our supporters in the Senate who have asked us to activate the ALS community are reporting that your outreach is being heard on Capitol Hill! We want to give you the latest update on what is a very fluid situation. At this time, the Senate will not be voting on S. 3297 today. However, it's possible that a vote onS. 3297 and the ALS Registry Act could occur at any time over the coming days, including early next week. Senators are in the process of determining how they will proceed on a wide range of issues, such as the financial crisis, before Congress adjourns for the November elections, which could be as soon as next Friday, September 26. Therefore, the schedule is in flux and can change in just a matter of hours. Nevertheless, it's important that our message already is being heard on the Hill.

Given the rapidly changing schedule, we want to make sure that we do not miss any opportunity to pass S. 3297 and the ALS Registry Act this year. So your outreach today and over the next week is still critical. Keep up the great work! Letters you can send to your Senators will continue to be available on the
Advocacy Action Center of our website here,

We will keep you updated on the latest news. Since the Senate may act at any time next week, it may not be possible to provide significant advance notice. So again please keep an eye out for our Action Alerts.Your outreach is making a difference!

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