ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, March 4, 2014

People Are Dying In A Slow-Motion World

A study was recently published about the importance of nutrition to people with ALS.  It was based on a five-month study.  A person with ALS looked up the clinicaltrials.gov announcement of this study.  It started five years ago!  What took so long?

ALS organizations have started touting the importance of IPS technology in drug development.  This technology was named Time Magazine's top technology discovery in 2008.  What took so long?

People with ALS have been discussing the recent Orphan Drug indication for a bio-drug candidate for ALS -- GM-604.  It has been around for over 20 years.  What took so long?

Can someone tell us exactly what was going on (or not) with each of these projects during all those years?

This is nuts!

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