ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, February 26, 2014

People Dealing With ALS Simply Don't Have Time For This

How does a patient or caregiver find an ALS specialist or clinic?

Let's see...

http://www.alsa.org/als-care/newly-diagnosed.html 
http://mda.org/
http://wwwn.cdc.gov/als/
http://www.alsconsortium.org/contact_a_disease_specialist.php
http://www.alsworldwide.org/search.php

People with ALS simply don't have time to search five different times to see what pops up (and then try to sort out the differences).

These organizations often speak proudly of collaboration.  Here's an easy way to collaborate.  Let's have one excellent search tool that you all share.  Let's have the same accurate, complete information pop up regardless of where a person with ALS or a caregiver goes online.

People dealing with ALS simply don't have the time to deal with the hodgepodge of search information they get today.

And our ALS organizations don't have the money to waste on the redundant, expensive, and mediocre search tools that they provide today.

We're looking at a win-win solution here!


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