Who doesn't look at Yelp reviews before trying a new restaurant for a nice dinner?
Yet people with ALS who are choosing clinics and organizations and equipment dealers and physicians and clinical trials are expected to do so based on zip codes and blind faith. A poor choice has much larger implications than a noisy hotel room or a rude waiter.
Thousands of people use ALS resources every month yet we've not captured their experiences, thoughts, and impressions to help the next person.
ALS continues to be the disease of reinventing wheels.