Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, March 17, 2009

These High School Students Understand What ALS Advocacy Means

"Eight Hours With ALS"

The Hinkle brothers and Nash titled their event as "Eight hours with ALS” and kept silent all day as a symbol of the disease that robbed Vance Hinkle’s ability to speak.

“I was sitting in my service learning class and my teacher, said we should do something radical to raise awareness and funding,” Blake Hinkle typed out on the “Dynowrite,” a communication device provided by the ALS Association Northern Ohio Chapter. “The day after my dad died I was at a friend’s house and we thought of this idea, ‘Eight hours with ALS,’ to raise awareness.”

These students rock. We need for them and their bright minds to stay engaged with the cause!

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