ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Sunday, March 1, 2009

Let's Get ALS on the Sebelius Radar!

This would be an excellent time to remind HHS Secretary-elect Sebelius that ALS is a disease that takes a terrible daily toll on American health and vitality.

Everybody on Facebook, here you go...
http://www.facebook.com/pages/Kathleen-Sebelius/6361896707

Individuals and ALS organizations that have Facebook pages... your pages do no good if they're one-time projects that go fallow. Here's an opportunity to do something dynamic, effective, and visible with your Facebook presence. ...and surely somebody on the Sebelius staff will be watching the comments pouring in.

Everybody else, here's her contact page as governor... and she's still governor until she resigns that position, so email away...
http://www.governor.ks.gov/comments/comment.htm

Some things you might want to convey...
  • The ALS Registry needs funding in order for it to happen. We'll never connect the dots if we don't start collecting the dots.
  • ALS continues to kill and there is no known cause or cure.
  • The outlook is much the same today as it was for Lou Gehrig in 1939.
  • Americans can do better. Yes we can.
  • Talk about change we need!

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