ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Saturday, February 14, 2009

Stimulus Package Information from ALSA

Just some background to put the traditional ALS slice of the NIH pie into perspective before you read on about stimulus boost for NIH...
http://report.nih.gov/rcdc/categories/
Also, more commentary on the NIH pie at http://www.alscounts.com/slog.html

Following is from ALSA Washington, DC, office:

Stimulus Adds $10 Billion for NIH; Will Help to Support ALS Research

The ALS Association won a hard fought victory as Congress will provide an additional $10 billion for the National Institutes of Health (NIH) as part of the economic stimulus plan passed by Congress this evening and expected to be signed into law by President Obama. This represents a nearly 18% increase in funding over 2008 and will help to increase support for ALS research at the NIH, which is the single largest source of ALS research funding in the world. Click
here to read The Association's letter urging support for the increased funding.

Before President Obama took office in January, The Association also reached out to key members of the President's transition team outlining our priorities for the NIH and how the new Administration can support people with ALS in the fight for a treatment. In addition to advocating funding be included in the economic stimulus package, we also urged the new Administration to partner with the ALS community and support innovative programs that provide us with the best opportunities to advance ALS research as quickly as possible. A copy of our comments to the Obama Transition Team can be found
here .

3 comments:

  1. "The ALS Association won a hard fought victory as Congress will provide an additional $10 billion for the National Institutes of Health (NIH) as part of the economic stimulus plan passed by Congress this evening and expected to be signed into law by President Obama. This represents a nearly 18% increase in funding over 2008 and will help to increase support for ALS research at the NIH, which is the single largest source of ALS research funding in the world."

    Are we really fighting these "hard fought" battles hard enough or smart enough?

    Are we blind squirrels finding NIH nuts?

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  2. It would be interesting to know when, how, and to whom they reached out on the NIH transition team (especially since everyone was thinking "Daschle in charge of HHS" before the inauguration). If anyone has any insights, please let us know.

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  3. http://alsspreadtheword.blogspot.com/2009/02/change-we-need.html

    ReplyDelete