almost all people with ALS on inauguration day are gone (buried, not cured) by the next inauguration. They have been replaced by new recruits to this disease.
How do we get on the agenda?
From Politico, February 25, 2009 --
"President Barack Obama laid out an agenda Tuesday that would do just about everything but cure cancer. Actually, he promised to try that too. "
ALS needs to be visible and on the agenda. It's not there. The ALS "class of 2009" can't wait.