ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Sunday, February 8, 2009

Anything You Would Like To Share With The President Of The United States?

http://www.whitehouse.gov/contact/

There's a 500 character limit to each message.

We have a lot more than 500 characters who check out this site, so let's send the new administration a lot of 500 character messages.

Say what's on your mind.

Should the President visit with advocates on Advocacy Day?
Should the government do more to address veterans with ALS?
Should the government do more to prevent ALS in veterans?
Should industry receive incentives to discover and develop a cure?
Should healthcare delivery deliver better results for families dealing with ALS?
Should the government take the lead in research?
Should we all be outraged that this disease has gone on for so long?
Should we get a Registry that actually registers all cases of ALS?

The list goes on and on. Speak up, please!

What we have done for the last 140 years hasn't worked to figure out this killer disease. It's time for change.

3 comments:

  1. I think that President Obama and his family should go to a ballgame on July 4 and join the 4 ALS effort.

    ReplyDelete
  2. That's a GREAT idea! Imagine...?

    ReplyDelete
  3. If anyone can do a thing to make this happen, it will be President Obama. He is a good GUY with a big HEART.

    ReplyDelete