ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, August 13, 2008

Don't Let Coburn Control the Discussion!

He's still at it...

TulsaToday

If you read the article and have any personal connection with ALS, I'm sure that you'll find the sentence regarding the chimpanzees extremely offensive.

People with ALS have to spend a lot of life sitting down, but you sure don't have to take this kind of flack sitting down!

Coburn is also suggesting that the disease-specific legislation be stripped from the Advancing America's Priorities Act. That's peachy for diseases that can attract research dollars because of the market potential for their cures. That's not so peachy for a disease like ALS whose patient population is perceived to be small and short-lived. Time is running out for us to get the ALS Registry Act passed.

Please try to raise some awareness in local and national press about the urgency of an ALS Registry for a disease that has persisted for 139 years without an effective treatment, without a clue of the cause, without any steps toward prevention.

This is America. Please speak up. We need to counter the offensive Coburn press offensive.

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