ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, August 20, 2008

Doing Advocacy 24x7 Part II

From the PALS and caregiver-spouse who are always tuned in to advocacy and awareness... a description of their experience talking in schools about ALS --

We suggested to the teachers that they have their class watch "Tuesdays with Morrie" to give them a basic understanding of ALS. I think high school students are more mature (not much but a little) and are better able to take what is said with them the rest of their life. Also, by going to the Health Occupations classes you are targeting students who already have an interest in the health field, many of them will become CNA's soon after high school graduation. The students had some very good questions. We tried to make it fun, that was even one of the questions...how can you remain so positive? We got phone calls and emails from parents who knew us telling us how their kids had come home talking about our visit. It was a rewarding experience for us and hopefully a memorable one for the students. A couple months after our visit we were at a community picnic and one of the boys from the class came up to us and said he remembered us from the school and asked Ken how he was doing.We started with 2 schools last year and this year we want to cover as much of the county as we can. We are thinking about going to the Community College as well...

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