Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, April 16, 2012

Sometimes You Take Matters Into Your Own Hands

There is an excellent article in this morning's Wall Street Journal -- "Frustrated ALS Patients Concoct Their Own Drug," by Amy Dockser Marcus.

These are not whack-job patients who are grasping at theories that make no sense. These are young, bright patients who have done their homework and have a disease with no effective treatment options. The only options that the medical establishment offers them involve a quick downhill slide to death. Who can blame them for daring an intelligent roll of the dice?

Shame on us who are healthy and have provided them with a medical establishment that has not delivered for them and that cannot deliver in a time-frame that will help them. Shame on us for painting them into a corner. Bravo to them for making the world pay attention as they try to buy some time. Ben Harris and Eric Valor are heroes.


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