Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Sunday, April 29, 2012

It's Important To Be Able To Say, "I'm in!"

Physicians don't report cases of ALS to a health agency or to the CDC.  Until a few years ago we had no census of people with ALS.  Nobody was counting noses. 

The CDC's National ALS Registry changed that.  It's important that every person with ALS self-enroll in the National ALS Registry.  This message is simple and important, yet it somehow fails to find every person with ALS.

Please help spread the word.  It's critical.  Every person with ALS should be able to say, "I'm in!"

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