Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Saturday, January 22, 2011

OK, ALS Organizations, It's Your Turn

Individuals have been adding the CDC's ALS Registry buttons to their blogs and websites. It's time for some of our major ALS organizations to get with it!

All together. Now. Please.

1 comment:

  1. Since a whole lot of ALS organizations seem to be lurking here lately, I'll take advantage of the opportunity to send a message that I hope is helpful.

    Responsiveness to emails seems to be a challenge for many organizations (and the CDC). Everything is much harder than it needs to be with ALS, and it doesn't help when organizations and our government don't respond to email questions and requests.

    Sorry to go off topic. Thanks.