tag:blogger.com,1999:blog-62716487695149713.post7927763840818942730..comments2023-10-09T02:33:17.014-04:00Comments on ALS ADVOCACY: OK, ALS Organizations, It's Your TurnALSadvocacyhttp://www.blogger.com/profile/15638650524805735994noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-62716487695149713.post-63096732582141232482011-01-27T08:18:29.198-05:002011-01-27T08:18:29.198-05:00Since a whole lot of ALS organizations seem to be ...Since a whole lot of ALS organizations seem to be lurking here lately, I'll take advantage of the opportunity to send a message that I hope is helpful.<br /><br />Responsiveness to emails seems to be a challenge for many organizations (and the CDC). Everything is much harder than it needs to be with ALS, and it doesn't help when organizations and our government don't respond to email questions and requests. <br /><br />Sorry to go off topic. Thanks.ALSadvocacyhttps://www.blogger.com/profile/15638650524805735994noreply@blogger.com