Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, March 5, 2009

Are any PALS On The White House Guest List?

The White House Healthcare Summit is today. ALSadvocay has been googling for the attendee list without much luck. We hope that somebody there may be ALS-aware.

This would have been a grand day for a big gathering of PALS in Lafayette Park, perhaps.

It would be a refreshing change if the administration might value the opinions of people stuck with a killer disease that America has not addressed adequately.

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