ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, March 18, 2015

Yesterday Was The ALS Reality Challenge

It hit like a bucket of cold water to the face.  It was the ALS reality wake-up call.

First there was a twitter exchange with @gehrig38 (Curt Schilling) as he talked about the people with whom he would like to have dinner --



Then there was another set of twitter exchanges over a simple "ALS stinks" tweet --


Curt Schilling was right.  Lou Gehrig would be devastated that the disease still kills and that it is part of his memory.

And then we saw the reality of ALS in the words of a husband caring for his wife fighting the evil disease.

It's easy to talk about "hope" and "promise."  Those words raise funds and make us all feel good.

We also need to face the reality of ALS.  It is an outrageous, cruel disease, and we have failed to deliver a treatment.  Period.  We have failed.  That's reality.

We need to throw that cold water in our faces more often.  Challenge issued.


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