ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, March 19, 2015

We Have Failed

Epically.

Yesterday a young mother lost her battle (and I don't use that word lightly) with ALS.  She was a great mom.  I can think of nothing worse than for a young mother to have a disease that steals her ability to give a hug or see her young children through all the challenges and joys of growing up.  ALS is an evil disease.

And I also saw the farewell posting of a man with ALS.  Those happen more often than you might imagine.  The first time I saw one almost two decades ago, I said out loud, "No!"  And I've said it many times since.

So what now?

Tomorrow isn't just another day.  It is a day when families are stuck with huge holes where loved ones had lived vibrantly just a few months before.  It is a day when ALS-caused grief and immense challenges will permeate lives.

And we go on.  And our lives go on.  And we feel good about projects that are self-described as "promising" and "exciting" (those words that have been cheapened over decades of ALS failures).

This seems like the material that would have inspired a parable a couple thousand years ago.

We all need to look in the mirror today and say, "We have failed... epically."

And now do some things differently.

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