I share two reactions from people with ALS. They speak to the meaning of action. They speak to the meaning of urgency. They speak to the meaning of time. They speak to the meaning of now.
From a tweet this evening --
"I really don't know if I have 30 to 60 days left, then how long to ramp up production, might as well be a 100 years. it would still be nice to know this awful thing is beat."When their now is gone, it is gone forever.
And we must not let our understanding of that fade like slogans on t-shirts.