In one of the many mission-statement sessions I've participated in, a wise gentleman said that we needed to write a guiding message to tape over everyone's desk. It should affect every decision, every phone conversation, every email. Before you talk or hit send, look at that guiding message.
I realize that this screen shot is a statement of purpose from a tax form, but it has bothered me a lot, and words matter.
I hope that words like sympathy might be replaced with respect.
And I am not a victim. That's exactly why I do my best to fight back against ALS and related problems. It's about fight, not plight.
Moving forward I hope for a different attitude reflected by a powerful guiding statement of purpose. We are more than sad, pitiful stories. We have brains and ideas and a special rage. And skip the sympathy. Every person dealing with or who has dealt with ALS deserves respect.