ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, September 24, 2014

Let's Rewind The #ALSIceBucketChallenge Tapes And Look Again

It's remarkable as you look up old ALS ice bucket challenge videos on YouTube or national media websites.  Most of the big ones mentioned donating to "ALS research" or "to find a cure" before flashing the link to donate at www.alsa.org.  The frenzy was built around that message blurted out by so many national celebrities and leaders.

Clearly, donor intent was ALS research.  One can't assume otherwise, especially since the online #IceBucketChallenge donation form had no gift-restriction options for weeks.

As the long-awaited plan for the funds is being designed and the fight against ALS moves into high gear thanks to the buckets of generous donations, we trust that donor intent for ALS research is being honored.

It's simply the right thing to do for many reasons.

1 comment:

  1. Over 2000 signers of this petition to allocate at least 75 percent of ALSA IBC donations to research. https://www.change.org/p/als-association-must-dedicate-at-least-75-of-its-ice-bucket-challenge-donations-to-research

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