Some folks who participate supportively on an ALS message board started a petition a few days ago to ask that the ALSA IBC windfall be substantially directed to research. They asked me to post the petition here. It now has over 1000 signatures that include PALS, CALS, families, friends, donors. The message is simple. Thank you for listening.
https://www.change.org/p/urge-als-association-to-dedicate-at-least-75-of-its-ice-bucket-challenge-donations-to-research
Within minutes (literally) it was deleted and I was blocked from commenting or liking anything there again.Also deleted in the Sunday-night purge was one other posting that I had made days earlier suggesting that an infographic showing what happens to a hundred dollar walk donation and what happens to a hundred dollar national donation would be most helpful.
ALSA certainly has every right and responsibility to manage its facebook area as it thinks best.
I still believe that both comments are worth some thought and archive them here.
That's odd, same happened to me when I commented on an embezzlement arrest that took place a few years back.
ReplyDeleteA gofundme scammer post has stayed on ALSA fb page for over 20 hours. I hope that someone there might see this and take it down.
ReplyDelete