ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, June 5, 2013

We Need To Remember These Huge, Gaping Holes Left By ALS

A few months ago when a man with ALS who posted online using the name "Persevering" died, Emma, the forum administrator at www.patientslikeme.com wrote, "... a huge, gaping, Persevering-shaped hole is left."

That said it.

In the past year, we have so many huge, gaping, specially shaped holes left as ALS has stolen some very special people from us.

We love to see the stories of courage of those living with ALS, but those don't really remind us of all of those huge, gaping holes.  We need to remember.  We need to find ways to count the holes and not just the few who are allowed to live amidst us with ALS for such a short period of time.

God be with all who have huge, gaping holes in their lives.  God be with all dealing with ALS and with those searching for a treatment.  God be with us all because those huge, gaping, specially shaped holes that ALS leaves are a loss to every one of us.

Our gaping holes don't fill in like the waters in a wake, nor should they.

1 comment:

  1. It's the constant dance of those wonderful souls passing on and us wonderful newcomers to the ALS family being new supports to others as we ourselves receive support. LindaDu

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