ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Saturday, April 20, 2013

Don't You Wish You Could Have Been There?

Click here for the background materials for ALSA's Advocacy Conference and the day on Capitol Hill.

Their public policy priorities are again --


  • Appropriate $10,000,000 to continue the National ALS Registry at the CDC
  • Appropriate $10,000,000 to continue the ALS Research Program at the DOD
  • Enact the National Health Council's MODDERN Cures Act


Don't you wish you could have been there when they brainstormed, challenged, evaluated, analyzed, measured, questioned, disagreed, innovated, calculated, dreamed, disrupted, listened, questioned more, argued, and finally fleshed these out as the best 2013 legislative priorities possible for people with ALS?




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