ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Sunday, March 10, 2013

Monday Morning Quarterbacks, Where Were You When The Trial Was Designed?

It's easy to criticize clinical trial design after the fact.

We need smart input up front from more stakeholders, including people with ALS and caregivers.

We need open standards for data sharing.

We need more smart statistical eyes on the data.

You know what they say -- If you're not part of the solution, ...

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