ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, June 20, 2012

Thank You, American Academy of Neurology

It was a wonderful surprise to see a tweet come through from @AANmember to urge neurologists to encourage their patients with ALS to self-enroll in the National ALS Registry.  Here's a new article on the AAN website --
http://www.aan.com/news/?event=read&article_id=10607

Immediately after diagnosis, the neurologist has a big impact on the actions that a person with ALS and the family take (or don't take).  Many patients have reported not hearing anything about the National ALS Registry from their physicians, therefore, they had been hesitant to self-enroll.  As of today, we see that changing.

Thank you, AAN!

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