ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, June 7, 2012

Curing ALS Is Difficult. This Would Not Be Difficult.

This morning my Google news alert popped up with an ALS obit (which it does often). The name was unusual and the same name as a minister in my city who died from ALS around 10 years ago.


"Familial?" certainly popped into my mind. Or maybe simply coincidence.

For many years I've thought that it would be a valuable project for an ALS organization to archive ALS obits and establish a very simple online database of last names and dates of death. It surely wouldn't be difficult to capture the public information online. It seems like a simple project for an intern or a dedicated volunteer.
It could be useful not only for identifying possible family ties but also to retain more about the remarkable people who are stolen by this stinking disease.  The endless stream of obituaries supplies us with information that is well worth keeping for many reasons.
 

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