ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Tuesday, January 18, 2011

Nike Was Right - Sometimes You Need To Just Do It

The CDC's marketing of the national ALS registry has been less than impressive.

Sometimes you just need to take matters into your own hands. Let's do some simple things to remind people with ALS that they count and should enroll in the national registry so that they and their clues will be counted and used by researchers in the search for the cure.

Please, please, if you have a website or a blog or a Facebook wall, please post a link or a button to take people to the CDC's registry site.

Here's the link for the registry --

Here's a link that will give you a snippet of html code that will let you display a nice registry button with Lou Gehrig's picture --

ALS organizations who lurk here, please just do it. Everyone will benefit if we have comprehensive data on how many patients there are in the U.S. (hard to believe, but we don't have those numbers yet). The clues that they harbor just may unravel this mystery of a disease.

Individuals reading this, ask your friends and relatives on Facebook or with blogs to add a link or a button.

Just do it. It's simple. It's free. I't's important. It will work.

Please.

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