Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, January 3, 2011

ALS Advocacy Survey Results Are Available

Thanks to all who took the time to participate.

Click here to download results document.

The comments are interesting, and there are certainly some diverse ideas. Let's hope that they add some new energy and perspectives that will give some punch to the fight against ALS 2011!

If anyone would like to receive the plain old pdf, please let me know and I'll be glad to send it along.


  1. The entire list of comments on ALS awareness and advocacy should not be missed!

  2. Hard to imagine this survey was created by an ALS Advocate, a former caregiver that knows ALS firsthand. We continue to fund and entrust various nonprofits to do the hard work, yet the work always comes up short. I believe we are still waiting for an organization that is not afraid of overtime.