The U.S. National ALS Registry is open for business.
All people in the U.S. with ALS are encouraged to register themselves at https://wwwn.cdc.gov/als/AboutRegistry.aspx
It has been a long time coming. Perhaps some smart person will now be able to connect the dots. At least we are collecting them now!
Thanks to all who worked so hard to make this happen. It has been disrespectful of those who have died from ALS that we did not retain their clues. That changes today.