ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Friday, July 16, 2010

Hoosiers, Mark Your Calendars

We are very pleased that ALS TDI is bring its ALS Research 101 to Indianapolis on Tuesday, August 24. Especially encouraging is that the new leadership at the ALS Association Indiana Chapter is helping to get the word out to their patients and friends of this excellent opportunity to learn more about some of the current science going on at ALS TDI and to interact with a scientist. This is a model of two good organizations shaking hands and keeping the focus on their patients, and it's a refreshing approach.

If you are nearby, we hope to see you there. If you have friends and relatives in Indiana or know of any Hoosiers who might have an interest in science or ALS, please help spread the word.

The presentation will take place at the new Indianapolis Marion County Central Library (and it will also be a good opportunity to check out the digs. Now if we could only raise as much for ALS causes as that library cost!).



Here is the ALS TDI blurb --

The ALS Therapy Development Institute (ALS TDI) will be bringing its free ALS Research 101 seminar to Indianapolis on Tuesday, August 24th,. Dr. Steve Perrin, ALS TDI’s Chief Executive Officer and Chief Scientific Officer, will lead the presentation and discussion. Come learn more about this world-class non-profit biotech’s plan, approach and progress in discovering treatments for today’s patients.

Following a short presentation, Dr. Perrin will lead a discussion on the following topics of interest to people living with ALS today: ALS genetics, drug research, clinical trials, biologics, biomarkers, stem cells and caregiver support.

To register to attend, please visit
www.als.net/als101 or contact Jessica Sullivan at jsullivan@als.net or 617-441-7238.

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