ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, July 6, 2009

ALS Registry Information To Be Released

Don't get too excited. I learned the art of the teaser from CBS last week;-)

This is information regarding the Massachusetts registry --

http://www.boston.com/news/local/articles/2009/07/05/middleborough_awaits_release_of_als_registry_information?mode=PF

ALS advocates still wait anxiously for news of the June meeting of the national ALS registry investigators. If anyone has any news, please comment.

Maybe TMZ will get on the case.

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