ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Wednesday, April 22, 2009

Do We Have A Teaching Moment Staring Us In The Eyes?

Today's Google news on ALS is dominated by hundreds of Stephan Hawking stories. The world clearly wants to be kept apprised of his condition and the stories show that his is a mind that comes along once in a blue moon.

Do we have an ideal moment to explain to the world about ALS... about how small percentage live long (albeit very difficult) lives... about how many more have very short life expectancies... about how ALS hits different people in different ways... about how challenging it is to deal with the disease for one with means (let alone for one with modest means)... about how there are different varieties of ALS and MND... oh, and about how the loss of motor neurons does not mean a loss of marbles?

This is a good day for us to explain ALS to the world that is following Stephen Hawking so closely.

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