ALS Advocacy

ALS Advocacy
Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Saturday, January 24, 2009

We Can't Afford To Be Left Standing At The Station...

as the train loaded with $timulus$ dollars pulls away.

Today major corporations have initiated large-scale letter-writing campaigns to get their employees to pitch the case for helping them survive and create job growth.

Today labor unions are telling members of the 111th Congress how important it is to spend funds to maintain good American jobs.

Today special interest groups are getting the attention of the new administration so that they might be a part of the economic recovery packages.

It seems terribly wasteful for those with a vested interest in finding a cure for ALS to be silent while billions are spent on the recovery packages... so... I encourage you to take a quick minute and let President Obama and Vice President Biden know about ALS. Here is the contact form:
http://www.whitehouse.gov/contact/

Some things that might be worth mentioning --
  • There is still no known cause nor a cure for ALS.
  • The ALS Registry Act was passed, but without some money, nobody will actually do the work authorized by the ALS Registry Act. Nobody is counting noses. This is the information age, and we're not keeping basic information about ALS cases. You can't connect the dots until somebody starts collecting the dots.
  • People die from ALS. It's a nasty disease.
If any or all of those three points could be seared into the minds of the President and Vice President, that would be helpful. They have a lot of people grasping for their attention. We can't afford to be silent and forgotten.

In five minutes you can write a dynamite note on that contact form and let them know that there is a big change that we need in America, and that is to put an end to ALS.

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