Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, January 29, 2009

It's Time To Speak Up

From the Washington Post
A Lobbying Frenzy For Federal Funds

By Annys Shin
Washington Post Staff Writer
Tuesday, December 9, 2008; A04

Last week it was auto industry suppliers. Yesterday it was mayors from the nation's biggest cities. Now, auto dealers from across the country have arrived in Washington.

With Congress poised to vote on a rescue for the nation's auto industry and President-elect Barack Obama promising to launch a massive public spending program, Capitol Hill has once again become the scene of a lobbying free-for-all, with industry and local governments alike seeking some of the billions in taxpayer dollars that Congress is likely to spend in the not-too-distant future.

While some of the lobbying has been conducted by the usual hands on K Street, a parade of trade groups, unions and business owners have chosen to voice their pleas in person.


Please take a moment today and email your two Senators and your Congressperson to remind them that the little guy needs relatively modest funding for the ALS Registry Act so that some registering can commence. What does it profit our nation if we bail out banks and industries if their employees and retirees are subject to a mysterious, difficult, and expensive death from ALS? Perhaps there is a good job at the CDC that we need as part of this stimulus to simply implement the ALS Registry that was authorized last year. If we wait until May, there may not be any funds left after the lobbyists take care of their clients.

You can find your legislators by using the Thank You tool at

Simply change the text to ask in your own words that they listen to some important voices amidst the lobbyists' din over stimulus funds and help in implementing the ALS Registry.

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