The new administration seems to be in listening mode, and now is the time for us to give them an earful about ALS and the need to get the registry funded and implemented.
From this morning's (December 5) Wall Street Journal --
... Mr. Daschle will say the Obama administration wants input
from supporters -- as a way of getting average Americans to feel connected to
the process and invested in its success. At some point, the administration may
seek to mobilize supporters to lobby Congress or otherwise build support for a
plan.... Already, the Obama transition office has posted two health-care
videos on its Web site, www.change.gov,
and it is soliciting comments and ideas from people via the site.
Please use this opportunity to express the importance of implementing the ALS Registry to HHS Secretary-elect Daschle and the Obama administration at http://change.gov/agenda/health_care_agenda/ and "Submit Your Ideas." Today they are listening. By January, they may be so overwhelmed with problems that it will be much harder to get ALS on their radar.