Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, October 9, 2017

Are You Sure You Want To Drive Down This Foggy Road?

Transparency.  It's a word that every not-for-profit knows is important.  We must not take it for granted.

The fight against ALS is fortunate to have multiple industries with business interests in selling services and products to those dealing with ALS.  Many of the companies in these industries have generous philanthropy programs.  We are grateful for those.

Over the past few years we have seen the generosity lost in the fog of the word partnerships.

The corporate logos on websites and banners are not accompanied by any indication of the sizes of or restrictions on the donations.

Not-for-profit communications that shed light on services and products to benefit those dealing with ALS do not share that there have been charitable donations from those fine "partners."

Transparency.  We need to take it seriously with policies and disclosures that lift a potentially dangerous fog.

Organizational blind spots are bad enough. Why would we drive into a dense fog?

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