Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Friday, May 6, 2016

They're Painting Outside the Lines

And they're using a great big brush!

Welcome to ALS Advocacy Day 2016, when some smart people with ALS are pushing the modest edges of past advocacy efforts and making some people pay attention.

See what Matt Bellina is doing and please consider contacting your legislators about the bills that are described at

And read what Stephen Finger has to say about the proposed FDA Draft Guidance on ALS at  Before the end of May, please submit your own comments, too.

These are two smart people with ALS who are painting Washington red with new ideas that ignore the old limits.  Thanks to them both.

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