Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Monday, April 28, 2014

Let's Raise The Bar Ever So Slightly - Step 2

This one's so simple, too.

Every year we are surprised by events when we get social media updates from the events themselves.  Every year one ALS organization schedules an event on the same dates as another organization's event.  They schedule so far in advance that who knew?

Let's be efficient.  Let's be informative about what events agencies are sponsoring or attending.  Let's raise the energy bar on all that you do.

Technically a common, shared calendar where all ALS organizations contribute content would not be difficult.  The human and organizational factors may be a little more difficult, eh?  If you expect us to believe that you can advance the science against ALS, then you should be able to do this.  It's not hard. To do it the way you always have seems nuts.

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