Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, January 9, 2014

The Rolodex - Part IV

The patient story is so important to making ALS real to people.

Get ready, world, because there is a lot more to these ALS patient stories than you may have realized.

These are not passive glimpses into their diaries with tidy "The End" pages.

These are not "Queen For A Day" stories of misery designed to raise compassion for a cause or funding.

These are vital narratives of people's pasts that can set us on a course for change.  These are people who even after their deaths put us at the corner of the past and the future with some pretty clear directions for a better path for tomorrow.

We need to follow them.  Yes, they lead if we pay attention to their whole stories including their ideas and the outrageous circumstances they stood up to.  It's up to us to listen to them -- their ideas, their wisdom -- and forge a better path.  To do less is to miss their whole stories.  Get ready, world.

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