Lou Gehrig's Disease - Motor Neuron Disease - Amyotrophic Lateral Sclerosis
Thought it had been cured by now? Still no known cause. Still no cure. Still quickly fatal. Still outrageous.

Thursday, May 13, 2010

Only In America, Land Of Opportunity

It's nice living in a country where your nation gives you permission to set up a display for your cause in the shadow of the seat of government. On a cold and rainy Tuesday while hundreds of ALS advocates called on their legislators to ask for funding for the ALS registry under development and funding for ALS research, the Piece by Piece display stood nearby on Capitol Hill. Hundreds more visitors and government workers and legislators walked through the display and learned about Lou Gehrig's Disease. They will not forget. The beautiful Capitol dome reminds Americans and the world of the wonderful achievements of our country while the silent mannequins were screaming to our national conscience that we have some outstanding business to deal with -- ALS.

It was another good day for ALS awareness. It was a good kick in the pants from ALS advocacy in a setting where there are people who have the power to do something meaningful.

1 comment:

  1. Thanks for all of you being in Washington this week. I lost my husband, Roger Ross in April 2008 to this HORRIABLE disease. We must continue the fight to find a cure for this disease.
    Deborah Ross, CALS to Roger Ross, PALS - dx - 11/04 - earned his wings 4/11/2008